List of Famous People With or Had Osteogenesis Imperfecta

Ian C. Langtree Content Writer/Editor for Disabled World
Published: 2024/04/20
Post type: Awareness, Appreciation
Content: SummaryMajor – Related Posts

Synopsis: Names of notable people with osteogenesis imperfecta (OI) or who lived with the condition during their lifetime. Osteogenesis imperfecta (OI) is a group of genetic disorders that primarily affect bones. The term “osteogenesis imperfecta” means imperfect bone formation. Osteogenesis imperfecta (OI) is present from birth and is often caused by a defect in the gene that produces collagen type I, an important component of bone. Most cases of OI are inherited from one parent. However, some cases are the result of new genetic mutations. While the number of people affected by OI in the United States is currently unknown, the best estimate suggests a minimum of 20,000, and possibly as many as 50,000.

Main summary

Osteogenesis imperfecta (OI), also known as brittle bone disease, is a disease that causes weak bones that break easily. Sometimes bones break for no known reason. At least eight recognized forms of osteogenesis imperfecta are called type I to type VIII. The types can be distinguished by their signs and symptoms, although their characteristic features overlap.

Symptoms found in various types of OI may include the whites of the eyes (sclera) that are blue, short stature (short stature is a hallmark of moderate to severe forms of OI (famous people who have or had dwarfism), loose joints, hearing loss, breathing problems and problems with teeth (dentinogenesis imperfecta). A person with OI has a 50% chance of transmitting the gene and the disease to their children.

List of famous people who have or had osteogenesis imperfecta (OI)

  • Atticus Shaffer: American who plays Brick Heck in Half.
  • Bobby Nail: American bridge player in the ACBL Hall of Fame.
  • Christopher Hewitt: British poet and namesake of the Christopher Hewitt Award.
  • Doug Herland – American Olympic bronze medalist coxswain.
  • Dyson Carter: Canadian writer, editor and political activist.
  • Firdaus Kanga – Parsi playwright known for trying to grow.
  • Franco Bomprezzi: Italian journalist who received the Order of Merit in 2007.
  • Fredrick Brennan: Software developer and type designer who founded the image board website 8chan.
  • Freyja Haraldsdóttir – Member of the Icelandic Constitutional Assembly of 2010.
  • Gaelynn Lea: Violinist who worked with Alan Sparhawk and won an NPR music contest.
  • Guillaume Bats – French comedian.
  • Jack Binstead: British actor known for his role in British comedy. Bad Education.
  • Jake Hardman – Chamber pop artist from Manchester, UK
  • Jay Thomas Manuel: Music producer and social media influencer known as Mini Producer.
  • Jeremy Synot – Former Australian wheelchair basketball player and current head coach of the RSL Queensland Spinning Bullets National Wheelchair Basketball League.
  • Jordanne Whiley: British Paralympic bronze medalist in wheelchair tennis at the 2012 Summer Paralympics.
  • Josef Neumaier – Multiple Paralympic shooting medalist for Germany.
  • Julie Fernandez – British actress best known for her role in The British The office.
  • Kalyn Heffernan: Hip-hop artist and producer known for the group Wheelchair Sports Camp.
  • Kerry Ingram: British child actress best known for her role as Shireen Baratheon on the HBO series. game of Thrones and Matilda Ajenjo in Matilda the musical.
  • Leo Beuerman – Documentary Subject Leo Beuermanwhich was nominated for the Academy Award for Best Documentary (Short Subject).
  • Lin Yü-chih: He was once considered the shortest man in the world.
  • Madge Bester: South African woman and formerly the “world’s shortest living woman.”
  • Magdalena Buczek – Polish journalist and radio presenter associated with Radio Maryja.
  • McKenzie Coan: American Paralympic gold medalist in swimming.
  • Michel Petrucciani: French jazz pianist who received the Legion of Honor in Paris.
  • Nabil Shaban: Jordanian-British actor and writer who founded Graeae Theater Company, which promotes artists with disabilities.
  • Nadia Porras – Paralympic swimmer from Mexico.
  • Natalie Lloyd – Children’s author.
  • Nicky Chapman, Baroness Chapman: British disability rights activist.
  • Pernille Vallentin: Danish singer who also acts.
  • Peter Radtke: German founder of Die Deutsche Gesellschaft für Osteogenesis Imperfecta, also a philologist and actor.
  • Philippe Rahmy: French-speaking poet and novelist who received, among others, the Prix Dentan.
  • Prince Oddone, Duke of Montferrat – member of the House of Savoy.
  • Quentin Kenihan – Australian reality television personality who played Corpus Colossus on Mad Max: Fury Road.
  • Randy Guss – Toad the Wet Sprocket drummer.
  • Raúl Krauthausen: German/Colombian activist and winner of the German Order of Merit.
  • Rick Howland: Canadian actor known for playing lost girl trick.
  • Robby Novak (Child President): Motivational speaker and YouTube personality who often comments on his ability to overcome the disorder.
  • Sean Stephenson: American therapist, self-help author, and motivational speaker.
  • Sparsh Shah – Indian-American rapper, singer, songwriter and inspirational speaker from New Jersey, USA.
  • Stella Young: Australian comedian and journalist.
  • Tarah Lynne Schaeffer Sesame Street Actress.
  • Taylor Lipsett – American Paralympic gold and bronze medalist in ice sled hockey.
  • Theresia Haidlmayr – Former Greens politician – Austria’s Green Alternative.
  • Valentin Baus: German Paralympic silver medalist in table tennis.

NOTE: If you notice any inaccuracies in this list, please contact us so we can correct them. Additionally, if you think someone should be added to this list, please provide us with their name and any information to verify their disability. We value your help and you can contact us here.

You can also see our other lists of famous and well-known people with various disabilities and conditions, including actors, politicians and writers who contributed to society.

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Cite this page (APA): Langtree, I.C. (April 20, 2024). List of famous people who had or had osteogenesis imperfecta. Disabled world. Retrieved April 21, 2024 from

Permanent link: List of famous people with or who had osteogenesis imperfecta– Names of notable people with osteogenesis imperfecta (OI) or who lived with the condition during their lifetime.

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